US patient advocacy groups are planning events in 32 states and the District of Columbia to honor World Rare Disease Day, which calls attention to rare diseases like cystic fibrosis and others that afflict about 60 million people in the US and Europe, and about 400 million worldwide.
A rock-painting contest in Las Vegas. A fashion show in New York. A 7,000-meter race around the Washington Monument that’ll coincide with a similar #Racefor7 event in Bengaluru and Mumbai, India.
From Athens to Atlanta, from San Diego to Sydney, people across the globe will mark World Rare Disease Day on Feb. 28 in a variety of fun, creative ways. The goal: to raise awareness about the 7,000 or so known rare diseases, 95% of which have few treatments and no cures.