The Alliance for Pediatric Quality selected the Cystic Fibrosis Foundation’s Quality Improvement Initiative as one of four programs of excellence. The selection is due to the initiative’s impact on improving the quality of life and life expectancy of children with cystic fibrosis (CF).
“Because of the Cystic Fibrosis Foundation, the outlook for children with cystic fibrosis improves every year, and life expectancy continues to rise beyond what anyone thought possible just a few decades ago. The Foundation’s emphasis on improving care through innovative quality improvement efforts is paying off immeasurably for children with CF, who increasingly are growing into healthy, active adults, says Mimi Saffer, executive director of the Alliance.
The median predicted age of survival for children with CF has more than doubled to 37 in the past 25 years. Improved lung function and nutrition are rising nationwide across the Foundation’s care center network.
The Alliance is recognizing initiatives, like that of the Cystic Fibrosis Foundation, in hopes that pediatric providers will consider implementation of these successful practices.
“We’re honored to be selected by the Alliance as a successful quality improvement program and are glad that our best practices may help children receive better care in diverse settings across the country,” says Bruce Marshall MD, vice president of clinical affairs for the Cystic Fibrosis Foundation. “We look forward to working with the Alliance partners to promote better care for all children who face life-threatening diseases.”
