Pulmonary Fibrosis News explains where patients can go to obtain strategies, tips and suggestions on navigating the hurt, fear and anger surrounding their IPF diagnosis.
There’s a lot of literature out there that highlights strategies and tips for coping with a life-threatening illness diagnosis. The challenge is that most of this literature is written based on various theories from professionals including psychologists, chronic-illness specialists and doctors. This literature is very rarely written from a patient’s perspective.
Below are some credible websites, forums, foundations and social media platforms that attract patients and caregivers living with PF. While these individuals are not experts in the field of medicine or chronic illness, others might argue that they are indeed experts on PF/IPF, since they are the people living directly with the disease.